It doesn't feel like I have CES today......

I should have checked the date of the last submittion to this blog was....I know it has been awhile since I have been here....Lots has changed...I have had my surgery and am 5 days post op....and I feel great...I can walk....only to Vannas kitchen and to the bathroom and feel wonderful....I went into this operation scared and not very optomistic...the first one just did not do it...I hurt every day of my life...this has been the most dibilatating situation I have ever found myself in....I find myself not being very optomistic...I have numb feet and tingling in my toes...the list goes on but they are all CES related...and the CES is here to stay until it decides to move on and heal that nerve! lol...go body go!!!! Just having the relief of being able to stand up without pain....so far....and only for a few mins...after all just had surgery 5 days ago and am suppose to take it easy...trouble is I have the narcotics to mask the pain and the pain in gone and I have all this wonderful energy that a bright spring day can give you...no back pain...my legs are not hurting....I would love to be raking leaves.....

So the hospital trip was a trip....none of them were familiar with CES... I had to tell them what it was...I was flabergasted....I mean this is a teaching hospital, and a Spinal and Neurological clinic....they study the spine and brain ....would they never have heard of it????? I mean I had to explain the syndrome to them....is it that rare? I had not had a bowel movement for about 4 days before I went to the hospital...just could not go....well the nurse at the hospital told me I would have to have a bowel movement before I got to leave...I told her I needed a laxative....that I had not went for a few days....she ask how many and it had been like 6 or 7 days....I was feeling miserable....so she complied .....I got the laxative and I had a bowel movement...she of course had to see it and was amazed at how much...then ofcourse there is the 2 or 3 diareahha bouts that follow the blockage....bowel movements are a big deal if you have CES...it is something you plan...and not one medical professional knows about it....or talks to you about it...I have not had one dr ask me how my bowels are....I have had bowel movements that made my stomach and rectum hurt and ache for days afterwards.....at any rate my nurse was amazed...she had apparently seen her first CES bowel movement....lol...I really think that it scares them to death when you say.."well now that you have mentioned it....." lol..you can just see thier jaws drop! I have had some very good doctors thru this journey.....my family has been there to support me...I just wish the pain would stop.....But the doctors and nurses has been wonderful........

OK dears, I must run...muy legs are botheing me....I guess I have to go thru the leg stuff again!@


nite all.....painfree night to you all!

Cauda Equina Syndrome....A new way of life.: Preview "It doesn't feel like I have CES today......"

Cauda Equina Syndrome....A new way of life.: Preview "It doesn't feel like I have CES today......"

A new Doctor...a new surgery...a new day?

Well lots has happened since I have been here....I called and reported to Dr. Williams that the shots did not really help...they kept wanting to pin point me down to a percentage or something and the only thing I can tell them is the steroid shot dulled the pain...It did not take it away...it is still there, I still cannot stand to clean my whole kitchen...I still hurt when I get up and down...my legs still do not want to move as fast as they used to...they feel like they have minds of thier own...it is hard to explain...at any rate it seems because I did not tell them that I got atleast 50% relief from the shot they are not sure what to do with me so....I am off to see another Doctor...A Dr. Lemma....he is a big Orthopedic somebody at John Hopkins.....and a collegue of Dr.Nair....Dr.Nair said he would like to have a consult with Dr. Lemma and they they would decide what to do with me...lol...I he said that he was not sure surgery would help at this point at which point I asked him "So, what now...do I live on pain pills the rest of my life?" His answer was "I don't know".....again I have been crushed. There doesn't seem to be light at the end of this tunnel. I have an appointment this Wednesday the 6th to seen Dr. Lemma....and Dr. Nair said that I could plan on surgery a week later...so we will see what is going on then I guess. I seem to have all this crap to face and it seems to be out of my hands....I am tired of dealing with the CES...there has been so real change in that except today I noticed the my right butt cheek was numb...that is new...my toes feel like little fat sausages...and my legs are numb....sooooooooo hi ho hi ho it's off to ortho I go....lol.....I guess you have to laugh about it...I am tired of crying...simply tired of it.....more later......