Friday, April 29, 2011

It doesn't feel like I have CES today......

I should have checked the date of the last submittion to this blog was....I know it has been awhile since I have been here....Lots has changed...I have had my surgery and am 5 days post op....and I feel great...I can walk....only to Vannas kitchen and to the bathroom and feel wonderful....I went into this operation scared and not very optomistic...the first one just did not do it...I hurt every day of my life...this has been the most dibilatating situation I have ever found myself in....I find myself not being very optomistic...I have numb feet and tingling in my toes...the list goes on but they are all CES related...and the CES is here to stay until it decides to move on and heal that nerve! lol...go body go!!!! Just having the relief of being able to stand up without pain....so far....and only for a few mins...after all just had surgery 5 days ago and am suppose to take it easy...trouble is I have the narcotics to mask the pain and the pain in gone and I have all this wonderful energy that a bright spring day can give you...no back pain...my legs are not hurting....I would love to be raking leaves.....

So the hospital trip was a trip....none of them were familiar with CES... I had to tell them what it was...I was flabergasted....I mean this is a teaching hospital, and a Spinal and Neurological clinic....they study the spine and brain ....would they never have heard of it????? I mean I had to explain the syndrome to them....is it that rare? I had not had a bowel movement for about 4 days before I went to the hospital...just could not go....well the nurse at the hospital told me I would have to have a bowel movement before I got to leave...I told her I needed a laxative....that I had not went for a few days....she ask how many and it had been like 6 or 7 days....I was feeling miserable....so she complied .....I got the laxative and I had a bowel movement...she of course had to see it and was amazed at how much...then ofcourse there is the 2 or 3 diareahha bouts that follow the blockage....bowel movements are a big deal if you have CES...it is something you plan...and not one medical professional knows about it....or talks to you about it...I have not had one dr ask me how my bowels are....I have had bowel movements that made my stomach and rectum hurt and ache for days afterwards.....at any rate my nurse was amazed...she had apparently seen her first CES bowel movement....lol...I really think that it scares them to death when you say.."well now that you have mentioned it....." lol..you can just see thier jaws drop! I have had some very good doctors thru this journey.....my family has been there to support me...I just wish the pain would stop.....But the doctors and nurses has been wonderful........

OK dears, I must run...muy legs are botheing me....I guess I have to go thru the leg stuff again!@


nite all.....painfree night to you all!

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